If you try to Google this you’ll find that there’s not a whole lot of anecdotal information out there. (You can find some gnarly images too.) But, what I mean is that there is not a whole lot of people talking about them. We noticed Isla had a mark on her back at birth. Since she came out with her hand by her face and was pretty bruised we assumed her mark on her back was also a bruise (I pushed her out really fast).
At her first pediatric visit her doctor asked another doctor to look at the mark to see what it was (this other doc was not a dermatologist but was really interested in pediatric skin lesions and knew a lot about them). They took a photo and sent it off to a bunch of colleagues to get more information and to determine if it really was a smooth muscle hamartoma. It was. A few weeks later I noticed a smallish spot (about the size of my thumb nail) on Isla’s inner thigh near her butt. She was really dark when she was born (my father’s side is Portugese) and her skin color has slowly lightened so it’s made seeing these a lot easier than it was right after she was born.
So is it bad? Not really. They are usually benign and cause no damage to a person. The hamartomas will probably grow with Isla as she grows. The one on her back is a little fuzzy and feels rougher than her skin does but it’s not as noticeable as it is in the pictures below. Some people say these will go away, others say they’ll grow. Isla’s doctor thinks it may grow with her but we aren’t really sure yet. They don’t cause her any pain at all but we will just keep watching them and taking pictures to document if they change in any way. When she is about a year old we will take her to a pediatric dermatologist just to get their opinion– but for now we’re just waiting. If these do grow with her and she feels insecure about them in any way we will absolutely have them removed, regardless of them not being dangerous, it’ll be her decision.